Well, well, well...what a Christmas season it has been. On Christmas Eve, Jay and I were told that Baby Trey has Stage 4 Neuroblastoma. My heart dropped...my hands and feet went numb...my mind started spinning. I'll write more about that part at another time. Right now, though, I feel like I need to make it known that Jay and I are thankful.
Thankful? For what? Definitely not the cancer. But, this is the situation Trey is in and we're going to praise the Lord for....
*Trey limping. This is what prompted a call to the pediatrician which got the ball rolling. A lot of kids show no symptoms until much later....Yikes! How much later could it be?
*Calling the pediatrician. Some folks thought he might just be going through a growth spurt...
*A persistent team of doctors! When our pediatrician didn't know what was wrong, he sent us to get x-rays. When that showed nothing out of the ordinary, he sent us to an Orthopedic doctor at Children's Hospital. When she didn't know what the problem was, she sent us to a Rheumatologist in the hospital.
*All the tests! The Rheumatologist thought his limp might be Transient Synovitis (relatively harmless, will clear up on its own), when I emailed her ON A SATURDAY because Trey had started limping again, she emailed me back WITHIN AN HOUR and set up an appointment. At that next appointment, she ordered blood tests...then a bone scan...then an MRI...then a bone biopsy...then a full body CT scan. At the time, I thought all these tests were a real pain in the wazoo. Hmmmm...
*We live in a city with one of THE best Children's Hospitals in the country!
*Friends, family and community! Within hours of learning the diagnosis and sharing it, we were overwhelmed with love and support!
*God! We know in our hearts that the God that created the universe is holding Trey in His all powerful hands right now and that this situation will bring Him glory.
So, do we wish this had never happened to Baby Trey? Absolutely! We are sad and scared (I think I've cried 10 times today )...but, we have hope! And Trey is quite the fighter...as I sit in a darkened hospital room right now at 10 pm, Trey is refusing to go to seep and throwing his socks at me while singing "Happy birthday". No one has told him he's sick yet.
9 comments:
Jay and Rachel,
We are praying for Trey and your family. I found your blog because of your comment on another blog (can't even remember which one:-))
We will continue to pray!!!
love,
Buc and Carmen Grey
The throwing the socks and singing happy birthday is precious! I'm glad he is feeling so happy. We are sending many many many prayers your way.
indeed, much to be thankful for in the midst of all of this.
Be strong and of good courage!
I am a total mess reading this. You are just a gift to all of us, Rachel. Your family is a gift. And while I sit here covered in tears and mascara I know in every fiber of my being, that Trey is going to beat this. He is going to endure a lot and I am not even going to lie to myself and say it will be easy. Your faith. Your love. Your family. All of them; extraordinary. Baby Trey, King Henry says ''throw your socks and whatever else you got, mama doesn't mind a bit''!!
I laughed out loud at the socks/singing comment! Love that kid!!
Loving you guys and praying all the time.
I too, sit here in tears and mascara reading this and am really in astonishment at how strong you are. Trey is a fighter- like his Mom and I just know that he's gonna kick this terrible diseases' butt!
I cannot believe how faithful and strong you two are. Derek has told me numerous times he can't imagine such a test of faith and quite frankly, nor can I.
The whole Happy Heart family has been praying vigilantly for Baby Trey and the Mitlo family.
We hope 2011 is a year of complete healing in your sweet little boy. And since we know with God, all things are possible, we have every reason to believe it will be so!
McKinley's momma here....cancer sucks, but God is good! After reading your post and your comment that Trey does not know he is sick yet....the thought occured to me that he may never know. McKinley hasn't felt well from time to time and I know their cancers are different, BUT and a huge BUT....God has allowed her shine through day in and day out. Some days I see it all day long and my joy overflows and some days it's a moment here and there, but it is there! Praying that God shine through Trey all day long. Big hugs!
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